Rare Disease Lesotho Association

Welcomes You!

Rea u amohela!

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  ABOUT RARE DISEASE LESOTHO ASSOCIATION

We  Fight Helping Rare Disease Patients in Lesotho

Rare Disease Lesotho Association was founded in October 2017 by Nthabeleng Ramoeli , a young woman with Ehlers–Danlos Syndromes (EDS) and Seeng Nchai, a mother with child with a rare disease.

Our Purpose: The Organization assists all patients affected by rare diseases to access treatment and support care for improved health and quality of life.

Our Mission: To build a community of patients, caregivers, healthcare providers, and researchers to transform the lives of those living with rare diseases.

​​Our Vision: Revolutionizing rare disease care and raising awareness in Lesotho through collaboration with national and international stakeholders.

 

Meet the Founders

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NTHABELENG RAMOELI

Co-Founder

Madodo is a rare disease patient with a connective tissue disease, Ehlers–Danlos syndromes (EDS). EDS can effect a broad spectrum of the body's systems.

Her personal journey motivated her to become engaged and co-found Rare Disease Lesotho Association to better the lives of fellow patients.


The goal is through raising awareness the lives of rare disease patients can improve.

SEENG NCHAI

Co-Founder

Seeng, is an activist and a mother of a child with a rare kidney condition.

Her daughter’s journey began with a diagnosis of Nephrotic Syndrome (Diffuse Mesangial Sclerosis). She has always been passionate about bringing change to the world. Patient advocacy, raising awareness, giving people better living conditions, establishing a rare community and education in Lesotho was needed to be created.


For this reason Madodo and I founded Rare Disease Association  Lesotho (ADLA).

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What We Do

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BUILDING COMMUNITY

IMPROVING HEALTH

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RARE DISEASE AWARNESS & EDUCATION

 

EVENTS

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GALA FOR RARE DISEASE DAY - 2018

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YOUTH PICNIC

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RDLA’S BIRTHDAY

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World Suicide

Prevention

Day

 
 

CONTACT
RARE DISEASE LESOTHO ASSOCIATION

Thanks for submitting!

 P.O BOX 9339,  Maseru, Lesotho

+266.5388.5912

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